August 24, 2009
I was inundated with breast cancer literature upon my diagnosis and the dire warnings about lymphedema really freaked me out. A little back story for those of you lucky enough to be clueless about how this stuff works: Most breast cancer surgery involves the removal of at least a handful of lymph nodes. These little nodules of tissue act as waste-removal factories for the circulatory system. In an attempt to rid a patient’s body of as many stray cancer cells as possible, breast cancer surgeons carve out those nodes draining waste directly from the tumor. Sounds good, right? The problem is that any time you mess with the lymph nodes there is a chance that the neighboring nodes will refuse to pick up the slack. If that happens, the system gets backed up and you’re suddenly the proud owner of an unseemly swelling of the affected limb or body part called lymphedema. Even better, it can be permanent, requiring one to don a very unfashionable compression garment to squeeze the bejesus out of said arm. Just what every girl hopes for…one fat limb. Lymphedema is one of breast cancer’s many side show acts. Obviously it’s not the main event. Hello??? You have cancer. Is now really the time to worry about having a fat arm? But, just in case the cancer wasn’t enough to ruin your day, now you get to worry about having one of your arms blow up like a water-logged corpse. Great.
So, the only thing worse than having this happen (or, of course, dying from cancer) is knowing that you brought it on yourself. And this is where the alarm bells in my head really started clanging. Several things I read on the subject informed me that I’d be risking lymphedem post-breast cancer surgery if I was ever foolish enough to lift more than 15 pounds. And by ever, I mean never ever. I mean, seriously. Think about this…no more lifting bags of groceries from the cart to my car, no more picking up my infant niece, no more dragging yard waste around the yard while I weed like a maniac…and the list goes on and on. And, as if that’s not enough of a life sentence, the literature also warns that a woman who is post-breast cancer surgery should never pick up a suitcase with the now useless arm or carry a heavy bag over said shoulder, should she risk the wrath of lymph.
Okay, you’re going to tell me to stop whining about the possibility of backed-up plumbing in my arm when I tell you that my surgeon assured me not to worry. Huh? How can Dr. Feel Good tell me not to sweat it when Dr. Susan Love’s Breast Book insisted that I forever coddle my post-surgical arm like an 18-year old chihuahua? Turns out, Dr. Feel Good determined that I had good odds of dodging lymphedema because I’m young and fit. Plus, he only removed six of the little buggers, which was still about five too many for my tastes, but, as it turns out, it’s not out of the ordinary to lose a baker’s dozen or more during breast cancer surgery, which ups the odds of a lymph-drainage breakdown, so I should feel lucky…funny but I don’t. Instead, I’ve suspected the whole “lymphedema thing” was just another means to extricate breast cancer patients from their personal power. Not with any clarity of purpose but by a patriarchal medical establishment that would much rather pat us on the head and say “oh, you sweet thing, don’t lift a finger or you may irreversibly maim yourself” than give us a thwack on the shoulder and say “go live your life to the fullest.” Not to mention, taking the time to actually do the studies to find out whether or not the advice is really correct or just an old surgeon’s tale.
And so all of this tongue-wagging brings me to the reason for my post—a new study that made me smile and send a wave of gratitude to Dr. Feel Good (even if he is a fuck up) and the researchers who decided to test the “fragile arm” theory. Last week the New York Times reported on a new study published in The New England Journal of Medicine in which researchers found that not only are most doctors too restrictive in their post-surgery advice for breast cancer patients but also that more exercise, not less, may be the best way to ward off lymphedema. Whahoo!!! I’m not going to get into the details of the study or the article because (a) you can read them for yourself and (b) I’m trying to discover the charms of shorter blog entries. But, needless-to-say, I hope breast cancer patients and their doctors warm up to the idea of bulking up those arms because living in fear of lifting more than 15 pounds is no way to live.
March 6, 2009
Well, I’m back home, sans boobs. And while my two nurses–Mary and my Mom–are out seeing Maya Angelou at the IU auditorium tonight, I’m sneaking onto the computer. Shhhh! Mary is quite the taskmaster regarding how much I’m supposed to be resting, using my arms, doing my exercises, etc…so this post will be short and sweet.
As many of you know (thanks to Mary’s email update), the surgery went well. The surgeon removed six lymph nodes and the pathologist deemed all cancer-free. (Yes, I know, six sounds like a lot; the surgeon assured Mary they were very small nodes, but I’ve yet to get the full story on that.) Although neither Mary nor I were dwelling on the possibility of metastasis, hearing that the lymph nodes were negative was a relief that defies description.
I can’t say enough good things about the hospital. Everyone was professional, courteous, and kind. Best of all, no one blinked at Mary and I’s relationship. And, yes, the fact that we were worried about homophobia at a time like this is sad but true. And, no, we weren’t just being paranoid. My surgeon operates once a week in a town between Bloomington and Indy. The location was more convenient for us, but his nurse didn’t feel comfortable scheduling my surgery there because she feared how the staff might treat us. So, we went to the “big city” and everyone was very politically correct, except for one brazen nurse who made Mary blush, but I’ll let her tell you that story herself.
Now, I’m at home, therapy kitty in my lap, painkillers in my system, and, honestly, your kindness and generosity has put me at a loss for words. I want so badly to write something funny or profound, but the only thing I can think of to say is thank you. Thank you to all of you who’ve sent flowers, cards, and well wishes. Thank you to those who’ve left delicious food on our doorstep. Thank you to those who’ve taught Mary’s classes. Thank you to those who’ve kept us in your thoughts and prayers. To feel nurtured on every level–physical, emotional, and spiritual–by such a loving group of people is an amazing thing.
I will never be someone who says “cancer is a gift” because (to quote Kris Carr of Crazy, Sexy Cancer fame) “I would never give it to you,” but I can say that feeling this loved and supported by so many beautiful people is the most life-affirming gift anyone has ever given me. Thank you.